Creating Connection, Community, and Awareness One TTTS Story at a Time

Welcome to TTTS Parents and the stories of our experiences with Twin to Twin Transfusion Syndrome.

This blog was created as a place for parents to share their stories of TTTS; memories, hopes, fears, pain, joy, grief and celebrations. It is updated and maintained by the TTTS Support Team. All experiences and outcomes are welcome here.


Click on the categories drop down box and to find the categories you are interested in reading. The blog has been designed this way so that you can choose to read only the stories you want to read.  As we add more stories more categories will also be added.

Please note that all blog posts are personal experience and are not to be construed as medical advice. If you have concerns about your TTTS diagnosis, the medical options available to you, please consult your MFM (Maternal Fetal Medicine), perinatologist or OB immediately. You can also contact Fetal Health Foundation or go to our “What is TTTS?” page to learn more.



We want to hear from you.
So many of the stories about a family going through TTTS come from the mother’s point of view.  Our moms are courageous and brave women. We also want to acknowledge our brave and courageous dads. We are looking for TTTS Dads who would like to take part in our “I Am a TTTS Dad” campaign and share their experiences in going through Twin to Twin Transfusion Syndrome from their point of view.

So, dads, if you want to share your story in honor or memory of your children and to help other dads who will be having their own TTTS fight in the future, please email us at and title the email “TTTS Dad” so we can talk about our upcoming campaign.


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